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House of Representatives Staff Analysis: PCS for HB 475 Alzheimer's Disease and Related Forms of Dementia Education and Public Awareness

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Congressional materials
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2022 3093 Professions Public Health Subcommittee Proposed Committee Bill Analyses Fn Pcs04

Summary

A House of Representatives staff analysis of the PCS for HB 475, Alzheimer's Disease and Related Forms of Dementia Education and Public Awareness, sponsored by the Professions & Public Health Subcommittee and dated 1/24/2022. The analysis describes Florida programs overseen by the Department of Elder Affairs, including the Alzheimer's Disease Initiative, memory disorder clinics, the Purple Ribbon Task Force and the Alzheimer's Disease Advisory Committee. It states that the bill creates the READY Act, requiring the Department of Health to educate physicians and nursing professionals on early detection, cognitive assessment tools, Medicare annual wellness visits and billing codes. The section directory lists s. 381.825, F.S., and an effective date of July 1, 2022. The fiscal analysis reports no fiscal impact on state or local government.

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“House of Representatives Staff Analysis: PCS for HB 475 Alzheimer's Disease and Related Forms of Dementia Education and Public Awareness.” Original at www.flhouse.gov. Archived at Pandemic Darlings, https://pandemicdarlings.com/source-documents/2022-3093-professions-public-health-subcommittee-proposed-committee-bill-analyses-fn-pcs0475-pph/, SHA-256 86c3b177e8f18e378a8e2ca8026b2de7b1408d071e9bb67201f61e900c5eb8fd.

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                                  HOUSE OF REPRESENTATIVES STAFF ANALYSIS
BILL #:     PCS for HB 475 Alzheimer's Disease and Related Forms of Dementia Education and Public
Awareness
SPONSOR(S): Professions & Public Health Subcommittee
TIED BILLS:       IDEN./SIM. BILLS:

    REFERENCE                                                   ACTION                  ANALYST            STAFF DIRECTOR or
                                                                                                           BUDGET/POLICY CHIEF

    Orig. Comm.: Professions & Public Health                                            Guzzo              McElroy
       Subcommittee

                                             SUMMARY ANALYSIS
Alzheimer’s disease is the most prevalent form of dementia, a general term for memory loss. It is a progressive
brain disorder that damages and eventually destroys brain cells, leading to memory loss and changes in the
functions of the brain. Alzheimer’s disease accounts for 60 to 80 percent of dementia cases. There are an
estimated 5.8 million people in the United States with Alzheimer’s disease, including 5.6 million people aged 65
and older and 200,000 individuals under age 65 who have younger-onset Alzheimer’s disease.

Florida has several programs and initiatives under the oversight of the Department of Elder Affairs (DOEA) that
provide resources and support for individuals suffering from Alzheimer’s disease and other dementia-related
disorders. The Florida Department of Health (DOH) licenses physicians, osteopathic physicians, and nursing
professionals who provide care, among others, to patients with Alzheimer’s disease and other dementia-
related disorders.

The bill creates the Ramping up Education of Alzheimer’s and Dementia for You (READY) Act which requires
DOH, in partnership with DOEA and the Alzheimer’s Association, to educate physicians and nursing
professionals about Alzheimer’s disease and related forms of dementia. This effort will occur through existing
public health and community outreach programs and include education on:

            The importance of early detection and timely diagnosis of Alzheimer’s disease and related forms of
             dementia;
            Utilization of a validated cognitive assessment tool;
            The value and effectiveness of Medicare annual wellness visits in detecting Alzheimer’s disease
             and related forms of dementia;
            The use of Medicare billing codes for care planning for individuals with Alzheimer’s disease and
             related forms of dementia; and
            Methods to reduce the risk of cognitive decline, particularly among individuals in diverse
             communities who are at greater risk of developing Alzheimer’s disease and related forms of
             dementia.

The bill has no fiscal impact on state or local government.

The bill provides an effective date of July 1, 2022.




This docum ent does not reflect the intent or official position of the bill sponsor or House of Representatives .
STORAGE NAME: pcs0475.PPH
DATE: 1/24/2022
                                                          FULL ANALYSIS

                                                  I. SUBSTANTIVE ANALYSIS

    A. EFFECT OF PROPOSED CHANGES:
         Background

         Alzheimer’s Disease

         Alzheimer’s disease is a form of dementia, a general term for memory loss. It is a progressive brain
         disorder that damages and eventually destroys brain cells, leading to memory loss and changes in the
         functions of the brain. Alzheimer’s disease accounts for 60 to 80 percent of dementia cases.
         Alzheimer's disease is a progressive disease in which dementia symptoms worsen gradually over time.
         In the early stages of Alzheimer’s disease, memory loss is mild; in late-stages, individuals lose the
         ability to carry on a conversation and respond to their environment. Currently, the disease has no cure,
         but treatment can temporarily slow the worsening of symptoms. 1

         There are an estimated 6.2 million people in the United States with Alzheimer’s disease.2 By 2050, the
         number of people age 65 and older with Alzheimer’s disease in the U.S. is expected to double to a
         projected 12.7 million people.3

         Florida has an increasing number of individuals with Alzheimer’s disease. An estimated 580,000
         Floridians have Alzheimer’s disease.4 The projected number of Floridians with Alzheimer’s disease is
         estimated to increase by 24% to 720,000 individuals by 2025.5

         Alzheimer’s Disease Initiative

         Section 430.503, F.S., creates the Alzheimer’s Disease Initiative (ADI) within the Department of Elder
         Affairs (DOEA).6 The Alzheimer’s Disease Initiative is a statewide program that provides services to
         individuals and families affected by Alzheimer’s disease. The ADI includes the following programs: 7

                      Respite care and other support services for caregivers;
                      Memory Disorder Clinics;
                      Specialized Alzheimer’s Adult Day Care Centers; and
                      The Florida Alzheimer’s Brain Bank, which is a service- and research-oriented network of
                       regional sites which collect and study the brains of deceased dementia patients.8




                  Memory Disorder Clinics


1 Alzheimer’s Association, 2021 Alzheimer’s Disease Facts and Figures, available at       https://www.alz.org/media/documents/alzheimers-
facts-and-figures.pdf (last accessed January 20, 2022).
2 Rajan KB, Weuve J, Barnes LL, McAninch EA, Wilson RS, Evans DA, Population Estimate of People with Clinical AD and Mild

Cognitive Impairment in the United States (2020-2060). Alzheimers Dement. 2021 Dec;17(12):1966-1975. doi: 10.1002/alz.12362.
Epub 2021 May 27. PMID: 34043283.
3 Id.
4 Florida Department of Elder Affairs, 2021 Alzheimer’s Disease Advisory Committee Annual Report, available at

https://elderaffairs.org/wp-content/uploads/ADAC-Report-2021_FINAL.pdf (last accessed January 20, 2022).
5 Id.
6 S. 430.503(1), F.S.
7 Florida Department of Elder Affairs, Alzheimer’s Disease Initiative, available at http://elderaffairs.state.fl.us/doea/alz.php (last

accessed January 20, 2022).
8 Florida Department of Elder Affairs, The Florida Brain Bank , available at http://elderaffairs.state.fl.us/doea/BrainBank/docs/BrainBank-

brochure.pdf (last accessed January 20, 2022).
STORAGE NAME: pcs0475.PPH                                                                                                         PAGE: 2
DATE: 1/24/2022
         Section 430.502(1), F.S., designates 17 memory disorder clinics (MDCs) 9 that provide comprehensive
         assessments, diagnostic services, and treatment to individuals who exhibit symptoms of Alzheimer's
         disease and related memory disorders. The MDCs operate in 13 distinct service areas. 10

                                            MDC Service Areas and Locations 11




         MDCs also develop training programs and materials and conduct training for caregivers, respite service
         providers, and health care professionals in the care of persons with Alzheimer's disease and related
         memory disorders.12 In addition, MDCs conduct service-related research projects through model day


9 S. 430.502(1), F.S.
10 Florida Department of Elder Affairs, Summary of Programs and Services 2019, available at

http://elderaffairs.state.fl.us/doea/pubs/pubs/sops2019/2019_SOPS_A.pdf (last accessed January 20, 2022).
11 Id.
12 Supra note 7.

STORAGE NAME: pcs0475.PPH                                                                                   PAGE: 3
DATE: 1/24/2022
         care programs and respite care programs.13 MDCs are established at medical schools, teaching
         hospitals, and public and private not-for-profit hospitals throughout the state in accordance with s.
         430.502, F.S. MDCs served 9,753 clients in 2017-2018.14

         Purple Ribbon Task Force and Alzheimer’s Disease State Plan

         Chapter 2012-172, Laws of Florida, created the Purple Ribbon Task Force. The task force was
         composed of 18 members with 6 members appointed by the Governor, 6 members appointed by the
         Speaker of the House of Representatives, and 6 members appointed by the President of the Senate. 15

         The law required the task force to conduct an interim study regarding Alzheimer’s disease in the state
         and directed the Task Force to:16

                       Assess the current and future impact of Alzheimer’s disease on the state;
                       Examine existing industries, services, and resources that address the needs of persons with
                        Alzheimer’s disease;
                       Develop a strategy to mobilize a state response to Alzheimer’s disease; and
                       Gather information on state trends and policy regarding Alzheimer’s disease.

         Additionally, the law required the task force to submit a report in the form of an Alzheimer’s disease
         state plan.17 The 2013 completed report by the task force is the State Plan on Alzheimer’s Disease and
         Related Forms of Dementia.18 The state report included the task force’s findings and recommendations.
         Upon submission of this report, pursuant to law, the Purple Ribbon Task Force terminated.

         Current law requires DOEA to review and update the Alzheimer’s disease state plan every three years.
         The state plan must include an assessment of the current and future impact of Alzheimer’s disease, an
         examination of existing resources available to persons living with Alzheimer’s disease, and other
         information regarding Alzheimer’s disease trends and policies in the state. 19

         Alzheimer’s Disease Advisory Committee

         Section 430.501, F.S., establishes the Alzheimer’s Disease Advisory Committee (Committee) to advise
         DOEA on legislative, programmatic, and administrative matters regarding individuals with Alzheimer’s
         disease and their caretakers. The committee is established within DOEA and composed of 11
         members appointed by the Governor, 2 members appointed by the Senate President (one of which
         must be a sitting Senator), and 2 members appointed by the Speaker of the House of Representatives
         (one of which must be a sitting Representative).20 The Governor’s appointments must reflect the
         following representation:21

                       At least four members must be persons licensed pursuant to ch. 458 or 459, F.S., or hold a
                        Ph.D. degree and be currently involved in research on Alzheimer’s disease;
                       At least four persons who have been caregivers of victims of Alzheimer’s disease; and
                       Whenever possible, a gerontologist, a geriatric psychiatrist, a geriatrician, a neurologist, a
                        social worker, and a registered nurse.

         Committee members are appointed to four-year staggered terms. The chair is elected by the
         Committee and serves a one-year term. The Committee may establish subcommittees as necessary to
         carry out the functions of the Committee. Currently, the Committee has four standing subcommittees

13 Id.
14 Supra note 10.
15 Ch. 2012-172, Laws of Fla.
16 Id.
17 Id.
18 Florida Department of Elder Affairs, Purple Rib b on Task Force State Plan on Alzheimer’s Disease and Related Forms of Dementia,

available at https://www.alz.org/media/Documents/florida-state-plan-august-2013.pdf (last accessed January 20, 2022).
19 S. 430.501, F.S.
20 Id.
21 Id.

STORAGE NAME: pcs0475.PPH                                                                                                    PAGE: 4
DATE: 1/24/2022
         regarding clinical services, home- and community-based care, education and research, and legislative
         advocacy.22

         The Committee is required to submit an annual report to the Governor, the President of the Senate, the
         Speaker of the House of Representatives, and the Secretary of Elder Affairs by September 1 of each
         year. The report must include recommendations on Alzheimer’s disease policy, all state-funded
         Alzheimer’s disease efforts, and proposed updates to the Alzheimer’s disease state plan.

         DOEA must use the report submitted by the Committee and collaborate with other organizations and
         professionals when updating the state plan. DOEA must submit the updated state plan every three
         years to the Governor, the President of the Senate, and the Speaker of the House of Representatives.23

         Dementia Care and Cure Initiative

         The DOEA announced the Dementia Care and Cure Initiative (DCCI) in 2015 to engage communities
         across the state to be more dementia-caring, promote better care for Floridians affected by dementia,
         and support research efforts to find a cure. In collaboration with Florida’s 11 Area Agencies on Aging
         and 17 memory disorder clinics, participating DCCI communities organize task forces consisting of
         community professionals and stakeholders who work to bring about education, awareness of, and
         sensitivity regarding the needs of those affected by dementia. 24

         Health Care Licensure in Florida

         Chapter 458, F.S., governs licensure and regulation of the practice of medicine by the Florida Board of
         Medicine in conjunction with the Florida Department of Health (DOH). Physicians holding a Doctor of
         Medicine (M.D.) degree are licensed under this chapter.

         Chapter 459, F.S., provides for the licensure and regulation of the practice of medicine by the Florida
         Board of Osteopathic Medicine in conjunction with DOH. Osteopathic Physicians holding a Doctor of
         Osteopathic Medicine (D.O.) are licensed under this chapter.

         Chapter 464, F.S., provides for the licensure and regulations of the practice of nursing by the Florida
         Board of Nursing in conjunction with DOH. Individuals licensed under this chapter include registered
         nurses (RN), advanced practice registered nurses (APRN), licensed practical nurses (LPN), and
         certified nursing assistants (CNA).

         Medicare Program

         Medicare is a federal health insurance program for people 65 or older, people under 65 with certain
         disabilities, and people of any age with end-stage renal disease (permanent kidney failure requiring
         dialysis or a kidney transplant).25 The program is administered by the Centers for Medicare and
         Medicaid Services in the U.S. Department of Health and Human Services.
         Medicare will pay for some services during every stage of Alzheimer’s disease and dementia care,
         such as:26

                      Cognitive assessments;
                      Home safety evaluations
                      Planning for care;

22 Alzheimer’s Disease Advisory Committee, 2009-2016 Summary of Accomplishments,

http://elderaffairs.state.fl.us/doea/alz/ADI_Accomplishments.pdf (last accessed January 20, 2022).
23 S. 430.501(3)(b)8., F.S.
24 Department of Elder Affairs, Dementia Care and Cure Initiative, http://elderaffairs.state.fl.us/doea/dcci.php (last accessed January 20,

2022).
25 Medicare.gov, What’s Medicare, https://www.medicare.gov/what-medicare-covers/your-medicare-coverage-choices/whats-medicare

(last accessed January 20, 2022).
26 Centers for Medicare and Medicaid Services, Medicare and Medicaid Benefits for People with Dementia, August 2017,

https://www.cms.gov/Outreach-and-Education/American-Indian-Alaska-Native/AIAN/Downloads/Medicare-and-Medicaid-Benefits-for-
People-with-Dementia.pdf (last accessed January 20, 2022).
STORAGE NAME: pcs0475.PPH                                                                                                         PAGE: 5
DATE: 1/24/2022
                  Hospital stays; and,
                  Prescription drugs — Medicare Part D pays a portion of drug costs for individuals diagnosed
                   with dementia.

       Effect of Proposed Changes

       The bill creates the Ramping up Education of Alzheimer’s and Dementia for You (READY) Act. The bill
       requires DOH to use existing public health and community outreach programs to educate physicians
       and nursing professionals on a range of topics related to the diagnosis and treatment of Alzheimer’s
       disease and related forms of dementia. Specifically, the bill requires DOH to educate physicians and
       nursing professions on:

                  The importance of early detection and timely diagnosis of Alzheimer’s disease and related
                   forms of dementia;
                  Utilization of a validated cognitive assessment tool;
                  The value and effectiveness of Medicare annual wellness visits in detecting Alzheimer’s
                   disease and related forms of dementia;
                  The use of Medicare billing codes for care planning for individuals with Alzheimer’s disease
                   and related forms of dementia; and
                  Methods to reduce the risk of cognitive decline, particularly among individuals in diverse
                   communities who are at greater risk of developing Alzheimer’s disease and related forms of
                   dementia.

       The bill provides an effective date of July 1, 2022.


   B. SECTION DIRECTORY:
       Section 1: Creates s. 381.825, F.S., relating to Alzheimer’s disease and dementia-related disorders
                  education.
       Section 2: Provides an effective date of July 1, 2022.


                        II. FISCAL ANALYSIS & ECONOMIC IMPACT STATEMENT

   A. FISCAL IMPACT ON STATE GOVERNMENT:

       1. Revenues:
           None.

       2. Expenditures:
           None.




STORAGE NAME: pcs0475.PPH                                                                                PAGE: 6
DATE: 1/24/2022
   B. FISCAL IMPACT ON LOCAL GOVERNMENTS:

       1. Revenues:
           None.

       2. Expenditures:
           None.

   C. DIRECT ECONOMIC IMPACT ON PRIVATE SECTOR:
       None.

   D. FISCAL COMMENTS:
       None.


                                               III. COMMENTS

   A. CONSTITUTIONAL ISSUES:

       1. Applicability of Municipality/County Mandates Provision:
          Not applicable. This bill does not appear to affect county or municipal governments.

       2. Other:
          None.

   B. RULE-MAKING AUTHORITY:
       No rule-making authority is necessary to implement the provisions of the bill.

   C. DRAFTING ISSUES OR OTHER COMMENTS:
       None.


                            IV. AMENDMENTS/COMMITTEE SUBSTITUTE CHANGES




STORAGE NAME: pcs0475.PPH                                                                        PAGE: 7
DATE: 1/24/2022


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