House Bill 2273 — Study Committee on Human Genome Editing (Washington, 2020)

Summary

House Bill 2273, State of Washington, 66th Legislature, 2020 Regular Session, by Representatives Slatter and Irwin, prefiled December 23, 2019, read the first time January 13, 2020 and referred to the Committee on Innovation, Technology & Economic Development. The act relates to creating a study committee on human genome editing and adds a new section to chapter 70.220 RCW. Section 2 directs the Washington academy of sciences to establish the study committee, lists its duties and members, and requires at least one public meeting. The committee must submit a report by October 1, 2021, and the section expires June 30, 2022.

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Full text

     H-3464.2

                                HOUSE BILL 2273


     State of Washington       66th Legislature       2020 Regular Session

     By Representatives Slatter and Irwin

     Prefiled 12/23/19. Read first time 01/13/20. Referred to Committee
     on Innovation, Technology & Economic Development.




1        AN ACT Relating to creating a study committee on human genome
2    editing; adding a new section to chapter 70.220 RCW; creating a new
3    section; and providing an expiration date.


4    BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF WASHINGTON:


 5       NEW SECTION. Sec. 1. The legislature finds that the increasing
 6   scientific knowledge of genetics and genomics has offered insights
 7   into fundamental biological processes and enabled accurate diagnosis,
 8   early intervention, and targeted therapies of genetic diseases. In
 9   addition, the science of human genome editing, a collection of
10   technologies for creating changes in human genome, has advanced
11   rapidly   and   demonstrated  significant   potential   increases  in
12   efficiency and precision of achieving desired results while reducing
13   unintended or harmful events. With these advances come many profound
14   ethical questions about a wide range of potential applications that
15   include not only treating but also preventing disease in this and
16   future generations, or altering human traits unrelated to health
17   concerns. Ensuring safe and ethically acceptable uses of these
18   powerful tools and precluding irresponsible practices require
19   establishing appropriate regulations based on rigorous discussions
20   with the scientific community and diverse stakeholders about the
21   health and societal benefits and risks of human genome editing.
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 1       NEW SECTION. Sec. 2. A new section is added to chapter 70.220
 2   RCW to read as follows:
 3       (1) For the purpose of this section, "human genome editing" means
 4   any   process,  techniques,   or  technologies   for  making  precise
 5   additions, deletions, and alterations to the human genome.
 6       (2)(a) The Washington academy of sciences formed under this
 7   chapter must establish a study committee to examine scientific,
 8   ethical, and societal issues associated with human genome editing and
 9   to inform legislative approaches to safe and ethically responsible
10   uses of human genome editing.
11       (b) The study committee must:
12       (i) Review existing scientific research on the safety and
13   efficacy of human genome editing and evaluate potential health
14   applications, benefits, and risks of human genome editing;
15       (ii) Examine the ethical, legal, and societal implications of
16   using human genome editing;
17       (iii) Review existing regulatory infrastructure and processes for
18   evaluating or funding human genome editing development and uses, and
19   consider what additional regulatory and oversight approaches may help
20   ensure responsible and prudent use of human genome editing; and
21       (iv) Develop guiding principles for regulating human genome
22   editing.
23       (c) The membership of the study committee is not limited to
24   persons elected to the Washington academy of sciences and must
25   include:
26       (i)   Researchers   and  clinicians   from   relevant   scientific
27   disciplines;
28       (ii) Experts in the area of bioethics, ethics and public health,
29   or ethics and the emerging biomedical technologies; and
30       (iii) Representatives of the two largest caucuses of the senate
31   and the house of representatives, appointed by the president of the
32   senate and the speaker of the house of representatives, respectively,
33   to serve on the study committee in a nonvoting observational
34   capacity.
35       (d) In considering the issues described in (b) of this
36   subsection, the study committee must solicit public participation and
37   hold at least one meeting to provide a public forum for diverse
38   perspectives about human genome editing.
39       (e) By October 1, 2021, and in compliance with RCW 43.01.036, the
40   study committee must submit to the relevant committees of the
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1   legislature a report that summarizes the activities and findings of
2   the study committee and recommends the guiding principles for
3   regulating human genome editing.
4       (3) This section expires June 30, 2022.

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